Spinal Muscular Atrophy: Indira Gandhi Institute to offer free treatment for children
Indira Gandhi Institute of Child Health in Bengaluru. He called SMA a rare and often devastating genetic disorder while adding this initiative as a transformative one for patients from low-income families.
The government has established a Centre of Excellence for Rare Diseases (COERD) at the institute. «We are proud to share that this is the first such centre in the country to enrol 100 beneficiaries under the National policy for the Rare Diseases,» the minister said.
Since 2016, the government has been supporting patients with rare diseases and has provided Rs 75 crore as additional fund for the treatment of rare diseases. «We are also investing in infrastructure, training, and outreach to improve early diagnosis, making Karnataka a leader in addressing rare diseases,» Dr Patil said.
Rare diseases affect a small percentage of the population, yet have an enormous impact on individuals, families, and communities. Our Rare Disease Program is a comprehensive approach that emphasizes early diagnosis including prenatal diagnosis, accessible treatment, and holistic support systems, offering hope to families who face extraordinary challenges," Dr Patil said at the launch event in Bengaluru.
The minister announced a partnership between the Indira Gandhi Institute and the Chenni-based nonprofit Care and Protection of Children Trust (CPCT). The later will sponsor treatment of 50 children a year. Dr Patil thanked CPCI for supporting the government.
Leadership
Business Storytelling Masterclass
By — Ameen Haque, Founder of
